The title rhymes this means we are off to a good start!
When I was first diagnosed all I had to referents was the pamphlets my GI had given me, It took me while to actually look into Blogs/Vlogs and support site.
I felt as tho i was living in a fog, There was no one around me living with IBD. Once i had finally looked on YouTube for some Vlogs and Googling for Blogs I felt relieved there were so many great things!
By reading the blog sand watching the vlogs I got a sense of connection, a the feeling of understanding and empowerment. It gave me something to referents , somewhere to find information. I thought “why the heck didn’t my GI tell me about this wonderful community built within the walls of the inter-webs!?
I actually remember my GI at the time telling me and i quote “do not look on the internet it is only full of horror stories.” Be that as it may ma’am, It is also full of inspirational people and amazing educators. What she should have said was , (be careful while on the internet).
I feel that the moment you are diagnosed your GI should inform you that there are many blogs out there written by 100’s of IBDers, you should look into them, and you should join some support groups on FB!
That being said, Today i am going to give you my top favorite Vlogs, Blogs and websites:
The first ever IBD Video i watched was by Sara ringer , The video was I believe “How to tell someone what Crohn’s Disease or Ulcerative Colitis is”
She makes good quality well explained and easy to understand videos. She also writes a very popular well written blog :”INFLAMED & UNTAMED“
if you haven’t already I strongly suggest you go check here out, its okay I’ll wait…
Back? fantastic. The next thing i am going to tell you about is an amazing website ” Great Bowel Movement” It is a great place to find information and you can even by cool shirts like this one!
go check them out: Great Bowel Movement and buy a shirt , i’ll wait again.
Did you buy a shirt? I know you did. Next!
Next is “The Crohns Colitis effect” , it is run by an amazing father who’s young son suffers from IBD. He is also the head of the “IBD Round Table” which is where of group of IBD activists get together every month to talk about issues sounding IBD . Go check it out: The Crohns Colitis effect
The next blog i am going to share is “Crohns Diaries” The Crohns diaries is great, it is a very personal and thought-provoking blog , Christina Matthies has appeared numerous times on the “IBD Round Table” as well.
Go check out: The Crohns Diaries
Next is not a blog or anything but ts a book! written by “John Bradley” Called The Foul Bowel it is a “humorous and inspiring user’s guide to living with Crohn’s disease” Go buy Johns Book!: The Foul Bowel , I met him he is a wonderful person!
You bought the book!? awesome. Moving right along…
Anther great way to connect with IBDers is through FB support groups, you get to ask any question you want and get answers fast.
Next I am going to write a quick list out of some great blogs for you:
Well I could go on and on! There are truly so many amazing bloggers out here ..especially that last one 😉 …i kid i kid.
If you know of any bloggers/vloggers/websites I did not mention Please link them in the comments!
Thanks so much!
And a specal thank you to Milka S for giving me the idea to write the entry!
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