Flushing IBD Away ~ Quebec Gutsy Walk Team Page!


Support this important cause!

My IBD Life

Donate to & Share our Team page to help find a cure for Crohn’s Disease & Ulcerative Colitis!

flushing ibd away

Did you know- Anyone can get IBD!! but it is most commonly diagnosed between the ages of 15 and 25. 10% of those afflicted develop symptoms before the age of 18!

Every dollar you donate will count towards the Crohn’s and Colitis Canada’s most ambitious campaign yet. “The Make it stop. For life.” campaign:
http://www.crohnsandcolitis.ca/…/Make_It_Stop_For_Life_Awar…

It only takes a few minutes to donate/share But our gratitude will last a life time!

Donate to Flushing IBD Away team page by clicking here.


Try checking out some of my older enteries to get into the donating spirit!

IBD word play


Their IBD Life~Charlene on her son Sam


Their IBD Life~Kiefer Davis


Principal says no to awareness!?!? The Natasha Reilly story


Their IBD Life-Francine Violette


Twitter: @MerandaRonen

Google plus: +MerandaRoben

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Seasonal effects on IBD


My IBD Life

How Seasonal changes can effect IBD….

Photo from Google Photo from Google

Winter:
Winters cold damp weather can lead to more joint pain then you would usually experience during the warmer months. Also, With IBD fatigue is a huge issue, likewise, When you are cold you tend to have less energy add that to chronic fatigue and you are basically running on empty. During the month with below freezing weather where you are experiencing fatigued & have excessive joint pain you tend to stay inside more often add leading to you not get things done and/or being less active which will lead to stress and anxiety which are both triggers for most IBDers.
Also , you are not exposed to the sun as much in winter. Therefore, Less vitamin D. Viruses are more prominent in the winter months add that to you have a suppressed immune system  the risk of you catching a virus is heightened ,which in turn may lead to flare ups.
Stress is higher during…

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Message from Tommy


DSC_0959
Tommy says if he had a bank account he would donate to the Gutsy Walk!

The Gutsy Walk is a Walk organized by the Crohn’s & Colitis Foundation Canada
The Walk is held every year all over Canada to raise Awareness and money for these awful & misunderstood disease’s.

For the second year in a raw Myself and my support group  have signed up our team for the Walk! And we need help in reaching our goal of 1000$ by June 7th!

Donate to Flushing IBD Away team page by clicking here.

Donate to Flushing IBD Away team page by clicking here.

Donate to Flushing IBD Away

Every dollar you donate will count towards the CCC’s ” Make it stop. For life.” campaign!


If you are confused and/or do not know much if anything at all about IBD then continue reading these few paragraphs where i will elaborate on IBD.

IBD stands for Inflammatory Bowel Disease which is a grouping of two Disease’s , Crohns Disease and Ulcerative Colitis.

A lot of very very mislead and misinformed people have the ridiculous belief that IBD is the same thing as IBS which is so far from the truth for soooo many reasons:

IBD = Inflammatory Bowel Disease (Crohns Disease & Ulcerative Colitis)

IBSIrritable Bowel Syndrome

Check out my entry called Difference between IBD and IBS  

Watch this wonderful video created but Dr.Mike Evans explaining what IBD really is:

The general public also has the misconception that all people with IBD do is go the bathroom a lot. This is also WRONG! Even tho Bathroom issues are a very really factor for everyone with CD or UC ,IBD effects pretty much every part of the body ,it is impossible for someone without IBD to ever full understand the impacted IBD has on one’s life.

For example, did you know that 25% of people with IBD (Crohn’s disease or ulcerative colitis) will develop arthritis?
for more info on that take a look at my entry: Dr.Phil Has segments on IBD & now Rheumatoid Arthritis!

It is hard for people to understand that IBDers are suffering because IBD tends to be an invisible illness , watch this video by the amazing Sara Ringer ( @Sara_Ringer )


FAST FACTS directly taken from the Crohn’s & Colitis Foundation Canada:

>1 in every 150 Canadians has IBD (0.7% of the population).

>An estimated 5,900 Canadian children have IBD.

>IBD is more than twice as common as multiple sclerosis or Parkinson’s disease; about as common as Type I diabetes or epilepsy.

>There is no cure for IBD – patients require regular medications to manage their IBD, even during periods of remission, with additional medications needed during flare-ups; when this fails, surgery is often required.

>IBD is a lifelong, chronic disease, usually starting in early adulthood in otherwise healthy, active individuals.

>People with Crohn’s disease are 47% more likely to die prematurely than people without IBD.

>People with IBD have an increased risk of colorectal cancer.

>IBD causes significant non-financial costs to both patients and their families. Quality of life in IBD is low across all dimensions of health, compared to the general population.

>IBD severely impacts quality of life through ongoing debilitating symptoms, reduction in ability to work, social stigma, management of bathroom access issues, difficulty with physical intimacy, loss of leisure time, and limited choices of career, travel and other personal options.
Check out this link for those and more FAST FACTS:
FAST FACTS: The Impact of IBD in Canada 2012


Now that you have a better understanding of what IBD is I hope you consider donating to the Gutsy Walk!
Remember every $ counts in the fight to find a cure! If all you can afford to donate is 10$ then that is fine and if you can not afford to donate anything at all then we understand All we ask is that you to pass this message on by share this entry and/or sharing the link to our Team page!

Donate to Flushing IBD Away team page by clicking here.

Thanks so much!!


Follow me on twitter: @MerandaRoben

Follow me on Google plus: +MerandaRoben

Follow me on Instagram: merandaroben

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Flushing IBD Away ~ Quebec Gutsy Walk Team Page!


Donate to & Share our Team page to help find a cure for Crohn’s Disease & Ulcerative Colitis!

flushing ibd away

Did you know- Anyone can get IBD!! but it is most commonly diagnosed between the ages of 15 and 25. 10% of those afflicted develop symptoms before the age of 18!

Every dollar you donate will count towards the Crohn’s and Colitis Canada’s most ambitious campaign yet. “The Make it stop. For life.” campaign:
http://www.crohnsandcolitis.ca/…/Make_It_Stop_For_Life_Awar…

It only takes a few minutes to donate/share But our gratitude will last a life time!

Donate to Flushing IBD Away team page by clicking here.


Try checking out some of my older enteries to get into the donating spirit!

IBD word play


Their IBD Life~Charlene on her son Sam


Their IBD Life~Kiefer Davis


Principal says no to awareness!?!? The Natasha Reilly story


Their IBD Life-Francine Violette


Twitter: @MerandaRonen

Google plus: +MerandaRoben

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Donate To Our Gutsy Walk Team! “Flushing IBD Away”


This is the second year myself and the member of my support group
Quebec & New Brunswick Crohn’s and ulcerative colitis support group ”
have registered as a team to the participate In the Gutsy Walk on June 7th!
We are looking for your help to reach our Team Goal of 1000$ ! Anything will help , Donate today at:
Flushing IBD Away Team Page

flushing ibd away

Follow me on twitter: @MerandaRoben

Follow me on Google plus: +MerandaRoben

Follow me on Instagram: merandaroben

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Why haven’t we cured inflammatory bowel disease?


IBDers, Check this out.

Science Life

David Rubin, MD, recently hosted an information session for patients titled, “Why haven’t we cured Crohn’s disease and ulcerative colitis?” Rubin, who is Section Chief of Gastroenterology, Hepatology and Nutrition at the University of Chicago Medicine, co-hosted the session with Russell Cohen, MD, Director of the Inflammatory Bowel Disease Center at UChicago Medicine. He said the idea for their session came from a similar question asked by a patient years ago.

“I gave a lecture to patients about managing inflammatory bowel disease. Someone came up to me afterwards and said, ‘Dr. Rubin, that was a great lecture, but you never once mentioned a cure. We want to hear about cures,’” he said. “That really reflected on me in a way that was profound. I was so focused on what we do day-to-day, that I was losing track of the bigger picture.”

Science Life spoke to Rubin recently about…

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Dr.Phil Has segments on IBD & now Rheumatoid Arthritis!


I absolutely Love how The Dr.phil show has been bringing attention to our invisible disease’s lately!

Last month it was a segment on Ulcerative Colitis featuring a lovely lady named Diane:


Today it was a segment which featured Pam a Rheumatoid Arthritis sufferer!

Did you know that 25% of people with IBD (Crohn’s disease or ulcerative colitis) will develop arthritis?


My experience: 
I myself do in fact have Arthritis. It is one of the hardest types of pain for me personally to deal with at times.
It is hard to explain the pain Arthritis causes to someone who does not have it. Some say it is at the same level of pain you would feel if you had a sprained or broken bone. “I myself cannot confirm or deny that do to the fact I have never sprained or broken any bone’s in my life. However it does sound accurate.”  The fastest easiest way for me to explain Arthritis pain would be; Intense stiffness , weak feeling joints that are tender to the touch.

IBD & Arthritis go hand in hand . When my Arthritis starts up I know my Crohn’s is not under control.

Although, my Arthritis affects my knees , hand & ankles as well it tends to be the worst in my hips and shoulders.
When my Arthritis is flaring up I have a hard time falling asleep because my hips are in so much pain that I can not find a comfortable position to stay in.
The first time my Arthritis flared up very badly was during a Crohn’s Flare.
I remember walking up in the morning having to rush to the restroom. I quickly tried to get out of bed and stand up, The pain in my hips & knees was unbearable , As I stood up my knees buckled and I went down to my bum , My dog helped my stand back up “she was concerned”. I had to painfully stretch out my legs while trying very hard to hold in my poo. “which if you have IBD you can imagine how difficult that was..it didn’t work btw so there ya have it. Not a great start to the day if i may say so  myself.”
Both IBD and RA tend to be the worst in the mornings for a good number of people so what happened to me is unfortunately not uncommon.

During an Arthritis flare I will also have a hard time lifting anything. Doing everyday tasks becomes a nightmare, Brushing or washing my hair or even my teeth is painful because it is very hard to have my shoulders be lifted or held in those positions for any amount of time.
Just to mention a few, Doing dishes , Writing , typing , cooking, walking my dogs if they pull or even just having to hold the leash is painful.

So many people are Fighting both these disease’s (IBD & RA) I am so very grateful that The Dr.phil show acknowledges the battle we go through and gives it such a huge platform. By him doing that I know that good information and awareness will reach many many people.

Thanks Dr.Phil!!

Dr.phil

Share your IBD &/or RA story or experience in the comments below!!


Follow me on twitter: @MerandaRoben

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